21.2.19

Let the spica journey begin

It has been two weeks since Squeaky had his open reduction at the Royal London Hospital.
It has been a roller coaster of a ride. 
We arrived at the hospital at 7.30 am with surprisingly chilled baby, even though he had missed breakfast.
We had met all the team. Dr Louis, the anesthetist, was amazing, calming and reassuring as Squeaky had a bit of a sniffle and said the operation could go ahead. Then Ms Biljsma and her team, we established the leg that required operating on and she seemed relaxed and happy. I said I was very keen on avoiding a femoral osteotomy. I know this was something that may have to be done but still wanted to avoid.
We were told we were first surgery and there wouldn't be long to wait. I took squeaky to theatre but we were sent back to the ward as there was no bed for when he came out of surgery.
In the end we didn't go to theatre till 11.30 am. Squeaky was very good and even napped although thirsty and hungry.
Surgery last 2.5 hours. I went to recovery, Squeaky was hooked up to a morphine drip and sporting a purple spica cast. It went down almost to his ankle on the left to just above his knee on the right. He was very upset but a mum cuddle soon sorted that out. He had a sleep in me as we waited for the ward nurse to come and get him.  Dr Louis popped in and said it went well. Then Ms Biljsma came in, she was very pleased, she said the hip went in better than she thought it would and that there was no need for a femoral osteotomy! I think a huge weight lifted at that point.
Sarah, the ward nurse arrived soon after and we were go to head to the ward. We collected Mr Gin on the way an and headed up with Squeaky in a huge bed and a morphine pump.
We got up on the ward and there was a visit from the pain management team and all the observations as well as Squeaky wanting to have cuddles. And with those cuddles as much as napping as possible.
We gave him food as soon as were allowed as he was starving. With food in his tummy he seemed more settled.
We played pass the baby and try to chill till after his dinner. Squeaky was really out of sorts and very much suffering with being doped up.  Mr Gin headed home to feed the cats and get some rest. I prepared for a night on an extendable couch.
Buckaroo on a dopey baby
It started okay, Clark settled and drifted off to sleep up kept waking. This continued with a lot of screaming and only sleeping on me. In the end it was decided to give him more morphine and some diazepam for muscle cramps. The spinal had worn off and he was very uncomfortable. He managed to pull out his morphine cannula which was a bloody mess but showed why they put two cannulas in babies, just in case they do that! It was a tough night being on a ward made it tougher.
The following day was a morning full of visitors, the pain management team, who where going to cut down his morphine with an eye for taking him off it. The OT fitted him into his buggy and gave me lots of information and was impressed with our organisation. A surprise visit from Dr Louis! The surgical team came in and agreed to make the hole around his bits bigger so we didn't have to fight to get the nappy in. The plaster technician was going to come and do this. Then for Squeaky, the best bit, Mr Gin arrived.
More cuddles, reading and playing happened. I went out for lunch and a bit of break while Squeaky slept and had lunch.
We waited for the plaster tech and got the morphine out. We then took Squeaky joy riding in his buggy! It became clear we were not going to see the tech so we had dinner and Mr Gin headed home.
I was a bit more prepared for the lack of sleep. We had some diazepam again but that hyped him up and he played peek a boo with himself for forty minutes! I managed to get him to sleep a little buy propping him up on his tummy. It was broken sleep after that and in the end I dozed on the couch with him wedge in but on me.
Mr Gin arrived early to rescue me and Squeaky played in the play room. We had a visit from the orthopedic team who chased up the plaster tech, Derek. Who some of you may remember for removing his other cast and fitting his palvik harness.
Once that was done it was a sign off from the pain team and the nurses and we could go home. I left the hospital about Lunch time and Mr Gin got Squeaky home for dinner.
A very long few days. More on the adventures with a small boy in a big cast soon.