21.8.19

I see dead people in my future.

I have had a bit of a time with planning my next operation. The timings all centred around Squeaky Cub and him finishing with the Spica. When we knew the Spica journey was coming to an end I contacted Johnathon Hutt at St Georges, only to find out that he was moving to University College of London Hospital to take up a position there.

This put timings out a bit and I had to think if I wanted change hospitals or surgeon.  After thinking I decided to continue with Mr Hutt and we moved hospitals and I saw him three weeks after he started in his new role.

To resolve the pain issues from the implant I am going to have a bone graft to hopefully distribute the pain that flares up and either reduces or removes it.  The pain is okay in the summer but winter it can be terrible. I ended up on my stick a couple days with a cold snap and it certainly was nagging.

This stem pain is a known side of the implant (S-Ron) and the bone graft should resolve it. If it doesn’t then I am going to lump it and chase a toddler, as the other option is a revision and I am too young for that. Neither I not Mr Hutt are keen on that option, because in his words, those replacements are hard to take out.  The graft will be donor bone, so prepare for dead people jokes and a push to donate your bits when you move on. (Tell your family.)

When I saw Mr Hutt, he was not sure what his waiting list was like and I have some plans coming up that we needed to work around. With some phone calls I sorted a date with the lovely scheduler and I have surgery on the 17th of September.  This could very interesting; the recovery shouldn’t be as long as a replacement but could be more painful to begin with. This could be interesting with a toddler!

I have had the pre-operation appointment and considering there has been no communication it is all go. Fingers crossed Squeaky is walking and we have begun planning, the logistics are a little worrisome.

14.8.19

Cast free, Bracing for walking.

It has been a while since I have posted, family and work life has been stressful but not for hip reasons.

Squeaky is doing really well. The cast came off over four months ago. It was a day that proved to be tough but wonderful. He was very mobile in the cast and had got crawling in it down to a fine art.

We arrived to the clinic and of course there was the x-ray. Then into see Ms Bijlsma. She was very pleased with the position of the hip but the socket is still a little shallow. This meant while we were there Derek the Plaster Technician would be fitting Squeaky for an Abduction Brace to be worn at night (and naps but we agreed that the poor childminders could have a break) for three months.
Ms Bijlsma
Ms Bijlsma added her note to his cast and we went to get the cast off. We had headphones and a phone loaded with “Hey Duggee” music clips and two parents trying to make it as easy as possible. It was not as bad as previous times as the novelty of the having the phone given to him was a difficult thing to ignore. He was still very upset but that first cast free cuddle was wonderful, the weight difference was astounding.


Derek told us that Squeaky would be stiff and his skin would require extra attention for a while. His skin was discoloured and flaky, the likes from the plaster liner clear on his skin. He also was very smelly. As was the cast, which we took home!

Skin after the cast came off.

That evening after a long warm bath with his Dad, Squeaky tried crawling, such a little champion and determined.

We will not miss the plaster; it was the hardest part of this process so far, hard physically and mentally. Best core exercise I have ever done but draining. He has a longish scar to show for it and hopefully that is all!

We began bracing straight away, we have had a couple of nights where he got uncomfortable or it was way too hot to contemplate the long PG trousers
Over the next few days he started to commando crawl and gaining strength to crawl “properly”.
Over the past months he has moved from crawling to standing to confident cruising to toddling with something to push.
 At three months after the cast we had another check up with x-rays. The angles are slowly getting better but Ms Bijlsma wants him in the brace for another three months. She also felt that shoes would be a good idea to help with walking. He is 18 months old now, a little behind his peers but we are not concerned with that, he has moved from complete relearning crawling to cruising in three months.


Walking will put pressure in the hip too and help with the angles and forming the ball of his hip.
We are not out of the woods yet but we are getting there, next solid walking in his new shoes and running for the edge of the woods.