Showing posts with label rant. Show all posts
Showing posts with label rant. Show all posts

12.8.16

Six months, really, yes really!

The Big Six month update.

It has been quiet on the blog because there is not all that much to report. Not much has changed but I have had the six months check up with Mr Hutt so an update feels to be in order. It is not an overly cheerful update because I am still frustrated but will try for an upbeat mode.

So, sports massage, brilliant idea, has sorted out my back. Fabulous! I have found a good masseur through work, she is close and reasonably priced. My rock hard calves have settled down which is brilliant. I suspect this is no longer a luxury but a necessary to help my body along as I try to sort this walk. Loosening muscles seems to help a fair bit and maybe it will help with the thigh pain I have having.

Thigh pain. A frustrating new thing along with a knee that is a bit sore and audible in its crunching! The thigh pain is from tip of the implant in my thigh bone, it is deep and ranges from nothing, a bit achy to quite sore. I rarely take pain killers for it but it is not something I want to live with. Mr Hutt has explained some of the issue comes from me being a dainty wee thing, well, short (153cm) and the stem being reasonably long. It tends to get sore when I put pressure on it from exercises etc. It is deep, under muscle pain. It was intermittent when I first got the hip done then disappeared and then came back in June and has not disappeared. Yet. There is hope as it all beds in that the pain will disappear and things will be peachy. The pain is such that I am bit wary of trying to run, even for a bus because I think that will be a nasty sharp pain. Mr Hutt, thinks in 12 month we will know if it is going to be an ongoing issue.

Sadly, if it does not go in that time, the only option maybe a revision and new hip. I want to avoid that. So much. So much. So at the moment lots research happening and exercising to gentle persuade the tip to bed in and the bone to become less sensitive! I just hope it is all worth it.

The knee could be muscles pulling on the knee cap which I will get my masseur to look at that and if that does not help, off to the GP! Frankly dodgy left knee is in the bad books because I would like the body to give me a break for a while.

Needless to say all the above it a bit tough to deal with and digest but recently finding someone with similar issues with the same implant and put in by the same surgeon has helped a lot.

Exercise. I hate the gym. But I am doing static biking, leg weight machine things and cross trainer. Not too much swimming lately but I am doing a fair amount of that, not quite cracked the 1 km in 30 minutes mark but hoping to soon. At some point there will be leg presses and rowing soon, if I can work out how to use the rowing machine!

The bloody walk. I have new sneakers but they are being rapidly destroyed by my twisty left foot. I am still hip hiking and a little bit of the waddle, a throw back from the old walk and also a bit with the thigh pain. Mr Hutt felt that perfection will not happen on its own and there are some terrible habits of a lifetime break. The skeletal foundation is the best we can hope for, we think the hip has settled about 1mm down which is not much but could have been the angle of the x-ray or a result of normal settling or a major collision I had with the floor 3 months ago. He is very pleased (as am I) with the movement I have. I can sit cross legged like a primary school child, this is something I have NEVER been able to do even as a child. The range of movement is very good and smooth. The muscles are building nicely but could do with some more building.  So, this means some more gym work and locating a physiotherapist to help with the walking. There is more in this than weak muscles, there are old habits and I do not really know what a proper walk feels like.  I think this is clincher, the past physio expected I would know what a normal walk would feel like. I really don’t I have never walked like a normal person, my gait has been awkward since I learned to walk on a dislocated hip as a two year old!

I am walking fair distances and with speed, I can keep up with Mr Gin pretty well and now there is no longer any forward planning for going out, I walk my local high street easily and climb two to three stories of stairs, although a bit puffy, quite well. My overall fitness and weight leave a bit to be desired but that is the story of my life and not really to do with the new hip. I could do with losing a good 30 kilograms and that might help with the overall fitness. Sadly, I find gym boring and rather like food and booze, so this is always going to be a struggle.  I have been walking more because of all things, Pokemon Go, it drives Mr Gin bonkers but gets me out and about. I am trying to catch buses that require more walking and generally not take the lazy way out. I have to try and cut down on the red wine.

Work is a stressful which makes cutting the wine down hard. We have a trip to Australia booked, I am sure that I will set some sensors off! I have also got it my mind this new hip is going to do some driving, a lot of it. I am looking forward to a holiday.

There is not much else to report besides a little six month celebration but that will get its own post!

7.1.16

Two weeks to go and I can not wait.

So, it is two weeks today till surgery and I can not wait. I am over the pain and in the grand scheme of things I have little to belly ache about it.
I am in the privileged position that my pain should disappear within month of the operation.  It may hurt from time to time but it has always been manageable. I was born broken and although my mother did the best she could in a small country town, I was not fixed. In the end a very good surgeon did the best he could with a bad situation. We knew that it was all going to pear shaped at some point and it was just a matter of time. Having always being broken, I don't really know different and it is just a way of life, frustrating at times and down right depressing at others but on the whole fairly happy and my normal.
Recently, someone on the Internet suggested I had more right to complain about pain and illness than others, because they felt I had an identifiable issue. ie mashed up hip. And I was 'allowed' to whinge. This rankles quite a lot.  Not only because that sort of statement is pretty ridiculous but also because it touched on something that I have been thinking about for a long time. The privilege of pain and that I am in the white straight man zone.
First, I just want to talk a little about pain. Up until recently I have had bouts of being pain free, if I sat for a while or was in bed it was pretty good. I know can feel the joint in bed and some day there is little I  can do to ignore it and have taken all the pain killers. I hobble about and swear a lot and rest a lot but I can get stuff done. Not as much as I would like but I am pretty good at working out what I can get done on a given day. But I have had to adjust everything in my life. I am not out as much, when I am out, I am packing heavy pain killers so I can walk, socialise or generally try and live life, within a hip that is rubbing bone on bone allows.
It is isolating because being at home is the best, less distance to walk, no pesky public transport and comfy couch and amazing bed. Our couch also allows me to lie down and there is a big arse telly with Netflix and a the Skybox. So, home is safe and cosy but we do live a fair way away from most of our social life when you are on a cane and restricted with distance.
That isolation plays havoc with your mental health, social media shows people out and about doing things, some that you have had to turn down. As time wears on getting people to come to you and getting to things becomes harder and it is easier to curl up at home. At home I have one person to complain to. Mr Gin is lovely but he does not need to hear that, me being in pain is tough for him too. He is doing more around the house and in general being the rock for my crazy. And crazy is the operative word. I have a couple outlets, social media, taking photos and sewing. Sewing is becoming difficult as the standing and the physical action of using the sewing machine foot is getting harder. So, the outlets are becoming smaller and social media is the best place to feel less like you are alone, driving the love of your life nuts. Facebook is a pub and twitter a huge nightclub.  Inevitably you end up being that person who has a one update. Or a couple, that revolve around how shitty you feel and you are cancelling again. But it is an outlet and an important one.
But I am very privileged. I have a light at the end of my tunnel, I have juggled and am on a road that should lead to new and possibly a better normal. As long as it does not go wrong relatively pain free, able to dance all night and then walk home. Why is this privilege? Because there is an end.
I have a number of friends with chronic conditions there is no end, there are less pain options but you have to give up something in some cases or there is simply nothing that can be done but managing life and expectations. And that isolation I have only had to deal with a short period is their life. And justifiably they have to have outlets because life is bed of roses and roses have big bloody thorns.  One friend, who has Ehlers-Danlos, a rare joint disorder was on the receiving end of some nasty stuff because she vented on Facebook. I was once briefly was misdiagnosed with Ehlers-Danlos, I am just overly bendy, nothing that causes the issues she has. And has no way to get away from them. Personally, I would be complaining a lot more than she does. And hell, more than most friends with issues.
Mainly because I have walked in their shoes for a mile and I don't like it, not one freaking bit. I am prevailed and acknowledge it. Next time you see that whiney sick mate complaining on Facebook, don't tell them to pull their socks up. Offer to take the party to them or just listen. And don't be a dick.
Bring on Thursday two weeks away.